Haley

Finally getting a good routine down<3 •My TPN “tray” I find very helpful keeping me clean and organized when setting things up✨🫧💕 • • #totalparenteralnutrition #tpn #nightroutine #chronicillness #ehlersdanlossyndrome #potsawareness #chronicallyill #malabsorption #setuptpn #fypシ #trending #pjs #goodnight #asmr #notthefullprocess #trendingaudio #growtogether

I hope you all had a good Saturday 💖 #totalparenteralnutrition #tpn #chronicillnessawareness #chronicillness #ehlersdanlossyndrome #gastroparesis #malabsorption #bloodclots #chronicallyill #foryoupage #fypシ #trending #trendingaudio #nightroutine #potsawareness #relatable #awarenessmatters

This song gave me flash backs to my older TikTok days 🤍 Also anyone else on TPN that know how to stop the anxiety of possible infection ever time you set it up, I’m terrified and keep getting worked up before I have to set it up. I can’t go through that again<3 any advice helps😅 #totalparenteralnutrition #tpn #nightroutine #ehlersdanlossyndrome #malabsorption #potsawareness #gastroparesis #chronicallyill #sepsis #bloodclots #trendingaudio #asmr #goodnight #itsgoingtobeokay #justbreathe #fypシ #trending

If you have questions about what I’m Setting Up and and a explanation:) Check out one of my recent videos I explained a lot of questions perversely asked <3 • • #totalparenteralnutrition #tpn #ehlersdanlossyndrome #gastroparesis #malabsorption #potsawareness #centealline #hickmancentralline #foryoupage #fypシ #trending #relatable #awarenessmatters #chronicillnessawareness

#chronicillness #eveningroutine #nightroutine #medicaltiktok #chronicpain #chronicillnessawareness #TPN #totalparenteralnutrition #jfeeds #gjtube #hickmancentralline #routine #tired #fypシ #trending #malabsorption #ehlersdanlossyndrome #potsawareness #gastroparesis #awareness

There are several reasons why a person may need TPN, so don’t think everyone that’s on TPN has the same story:) I Hope this answers a few questions! 💛#totalparenteralnutrition #tpn #ehlersdanlossyndrome #gastroparesis #malabsorption #potsawareness #chronicillnessawareness #chronicillness #question #awarenessmatters #foryoupage #fypシ #trending

Replying to @Crystal Casper #tunneledcatheter #totalparenteralnutrition #tpn #sanitizer #septic #germx #tooclean #godforbid #getoffmybutt #imadowhatworksforme #nevertoclean #ehlersdanlossyndrome #malabsorption #potsawareness #gastroparesis #chronicallyill #sepsis #bloodclots #fypシ #trending #response

🫧 Please no unsolicited medical advice<3, * I was medically Trained to set my own TPN up<3 * No it’s not more sanitary if you use regular nursing gloves, it’s only sterile if you use sterilized gloves and you would have to use a few pairs, no my company does not supply you with sterilized gloves to set up at home TPN, it’s not protocol and isn’t mandatory where i live:) * And No, using this much hand sanitizer or cleaning isn’t going to ☠️ me, sepsis can though and I will do anything I can to make sure i keep MY Body safe💞 the videos are also edited so it doesn’t show the full process:) * I’m on TPN for many reasons I have EDS, POTS, GP, malabsorption issues, in failure to thrive and have a low weight for my hight. TPN is getting absorbed into my bloodstream so my body can absorb all the calories and nutrients I need to survive and get my body out of starvation mode<3 @Versed Skin @Lissy Skincare @La Roche-Posay @byoma #nightroutine #totalparenteralnutrition #tpn #ehlersdanlossyndrome #gastroparesis #chronicallyill #potsawareness #septic #bloodclots #relatable #relatable #fypシ #trending#trendingaudio #awarenessmatters

@byoma @Versed Skin @Lissy Skincare @LaRochePosayUS @Grande Cosmetics @The Ordinary #totalparenteralnutrition #tpn #nightroutine #ehlersdanlossyndrome #potsawareness #pjs #goodnight #chronicallyill #malabsorption #trendingaudio #growtogether #itsgoingtobeokay #justbreathe #faith #trusttheprocess #relatable #fypシ #trending #byomaskincare #lissyskincare

Now I just need to find a gallon lol #trending #fypシ #totalparenteralnutrition #trendingaudio #chronicillness #humor #handsanitizer #ehlersdanlossyndrome #chronicallyill #funny #relatable

I Apologize for such repetitive content lately! My symptoms have been flaring and I haven’t had much energy<3 I promise I will post more when I’m less symptomatic <3 plus i always record myself setting it up because i can make sure i did everything correctly and watch it over for peace of mind, this video is very edited down so it doesn’t show all my steps🤍 #totalparenteralnutrition #tpn #ehlersdanlossyndrome #gastroparesis #malabsorption #chronicillnessawareness #chronicillness #nightroutine #potsawareness #relatable #awarenessmatters #handsanitizer #foryoupage #fypシ #trending #trendingaudio

Let’s make dinner 😮‍💨 #totalparenteralnutrition #tpn #ehlersdanlossyndrome #gastroparesis #malabsorption #chronicillnessawareness #chronicillness #nightroutine #potsawareness #relatable #awarenessmatters #handsanitizer #foryoupage #fypシ #trending #trendingaudio #setuptpn

Now girls let’s be honest what you like more the blonde or the brown 😭💛#hair #blondeorbrunette #idk #missingmyblondehair #helpchooseplease

@Vaseline I promise my hands aren’t gonna fall off because of how dry they get from hand sanitizer 😮‍💨💙 #chronicillness #totalparenteralnutrition #tpn #chronicillnessawareness #ehlersdanlossyndrome #gastroparesis #malabsorption #bloodclots #chronicallyill #foryoupage #fypシ #trending #nightroutine #potsawareness #handsanitizer

✨🖤#trending #isntlifebeautiful #fypシ #trendingaudio

Yeah today is a fail already🙃#relatable #chronicillness #awareness #tpn #totalparenteralnutrition #ehlersdanlossyndrome #gastroparesis #malabsorption #bloodclots ##chronicallyill #foryoupage #fypシ #trending

Day in my life 😊🤍 • @LaRochePosayUS @Kristin Ess Hair #dayinmylife #tpn #totalparenteralnutrition #ehlersdanlossyndrome #gastroparesis #malabsorption #potsawareness #centealline #hickmancentralline #getready #spendthedaywithme #foryoupage #fypシ #trending #relatable #awarenessmatters

I’m in shock still. This hurt SO MANY CHRONICALLY ILL people like me who rely on this as our only way to help pay for our healthcare.. people shouldn’t be try to take other down because they are jealous and greedy. Also this person’s apology was so so upsetting she still won’t give up the trade mark.. I feel she only put that video up because of the backlash she got and realized how many people were upset and mad!!!! The fact she said she didn’t know how it would affect other businesses owners.. WHILE SHE SPENT HOURS REPORTING EVERYONE ON ETSY.. again that’s acting on greed and selfishness she knew EXACTLY what she wanted to do, if she didn’t have a problem she wouldn’t report every listing on Etsy that has the word “tubie”. People SHE DIDNT CREATE THE WORD “TUBIE” but claiming it as her own product and creation when tubie pads and tubie tape have been around for MUCH LONGER then “her own Business”!!!! like tubie has been used for decades and A name for a TUBE, THEN for her to say it’s her own creation and patten so nobody can use or use the term is WILD and selfish and money hungry. There is ROOM for business like us to sell our items in the CI community we’re supposed to lift each other up and understand there are millions of people with medical devices so there IS ROOM FOR MORE THEN ONE TUBIE BUSINESS! I’m just still in shock. I was so upset that I had to deal with this on my Etsy while I’ve been admitted and needed to focus on healing my body and rest but NOPE had to spend precious time and the energy I don’t have to go through and change everything for my small business -haleysbuttonss. This hurts so many people in the community. I hope she decides to reverse the patten.. #chronicillness #ehlersdanlossyndrome #fypシ #fyp #SmallBusiness #berespectful #tubieitems #letssupporteachotherツ #dontbeselfish -tubie talk.

#chronicillness #hospitallife #ehlersdanlossyndrome #potsawareness #TPN #awareness #fypシ #idontcareifyoulikeme #22 #bekind #donewithdrama #iftheycaredtheywouldshowit #trending #trendingaudio #fyp

#chronicillness #chronicillnessawareness #totalparenteralnutrition #gjtube #ehlersdanlossyndrome #potsawareness #gastroparesis #malabsorption #fypシ #trending #trendingaudio #airball